Charleigh Pollock has a neurological disorder called Batten disease that leaves her with recurring severe seizures and mobility loss, and will eventually cut her young life short.
On one hand, it’s just money and its keeping a kid alive.
On the other hand, it’s a million dollars a year that isn’t going to treat other people, which likely could save more than one life. A million dollars a year is 2-3 fully staffed ambulances, or another 4 doctors.
I think though that given the medicine was already covered, it should stay covered. Taking it away is worse than not giving it in the first place. I wouldn’t be opposed to denying it to future children, just grandfather this child in.
This moral choice is hard.
On one hand, it’s just money and its keeping a kid alive.
On the other hand, it’s a million dollars a year that isn’t going to treat other people, which likely could save more than one life. A million dollars a year is 2-3 fully staffed ambulances, or another 4 doctors.
I think though that given the medicine was already covered, it should stay covered. Taking it away is worse than not giving it in the first place. I wouldn’t be opposed to denying it to future children, just grandfather this child in.