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This moral choice is hard.
On one hand, it’s just money and its keeping a kid alive.
On the other hand, it’s a million dollars a year that isn’t going to treat other people, which likely could save more than one life. A million dollars a year is 2-3 fully staffed ambulances, or another 4 doctors.
I think though that given the medicine was already covered, it should stay covered. Taking it away is worse than not giving it in the first place. I wouldn’t be opposed to denying it to future children, just grandfather this child in.